CADASIL ASSOCIATION © 2014

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

Links, research, support, doctor list

We are committed to the cure!

Embrace, the bi-monthly newsletter of the CADASIL Association, is actively seeking personal stories, questions for our doctor, news and events, fundraising ideas, creative writing pieces, doctor profiles, and memorials.

CADASIL is often mis-diagnosed as MS (Multiple Sclerosis). Check out our collection of information about this rare genetic disease from other websites and sources. View our doctor directory. Please note: CADASIL Association is not responsible for information found on external sites.

Help the CADASIL Association meet goals for our current and future patients by donating to our non-profit 501(c)(3) organization. One-time donations and recurring donations/subscriptions are appreciated.

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CADASIL Association

P. O. Box 124

Helmetta, NJ 08828

 

307-215-9840

(Please leave a message and a volunteer will get back to you as soon as possible.)

 

info@cadasilassociation.org

 

on Facebook

 

WHAT IS CADASIL?

 

CADASIL is an inherited disease often misdiagnosed as MS or other neurological disorders.

 

CADASIL is considered a serious rare disease that is underdiagnosed.

 

CADASIL causes multiple strokes and TIAs in adults, even young adults, often without cardiovascular factors.

 

CADASIL symptoms result from damage of small blood vessels, especially those within the brain.

 

CADASIL patients have symptoms of seizures, migraines, dizziness and balance problems, vision disturbances, fatigue, and mood disorders that include anxiety, depression, and apathy.

 

 

CADASIL is an acronym for:

 

Cerebral - relating to the brain

 

Autosomal Dominant - a form of inheritance in which one copy of am abnormal gene is sufficient for the development of a disorder

 

Arteriopathy - disease of the small arteries (blood vessels that carry blood away from the heart)

 

with Subcortical - relating to a specific area of the deep brain that is involved in higher functioning (voluntary movements, reasoning, memory)

 

Infarcts - tissue loss in the brain caused by lack of oxygen to the brain, which occurs when blood flow in the small arteries is blocked or abnormal

 

and Leukoencephalopathy - destruction of the myelin (an oily substance that covers and protects nerve fibers in the central nervous system)

 

 

CADASIL Association wishes to acknowledge the help of Association member Karl Stumpf for his creative assistance with graphic art used by the association.

The 2014 Membership drive is underway!

 

Join the CADASIL Association!

 

Become a member today and support the association and our mission to raise awareness of CADASIL. Membership is free and signing up is easy.

 

Click here to join us.

Petition for a Course in Rare Diseases

 

The CADASIL Association, representing all rare diseases, would like to invite you to join us in our campaign. We plan to present this petition to The Institutes of Medicine and The Association of American Medical Colleges to show that the public supports adding a course in rare diseases to the medical school curriculum. Why? Because a course in rare diseases would provide new doctors with increased knowledge and awareness, ultimately shortening the time for a more accurate diagnosis and effective treatment.

 

 

 

Click on the iGive button (left) to support CADASIL Association when you shop!

Please sign on to this petition in support of our effort. Every name we can add to our list of supporters strengthens our cause and helps the millions of Americans suffering from a rare disease. Your pledge of support to this cause could ultimately help save many lives.

We are also curecadasil.org!

CADASIL Association

P.O. Box 124

Helmetta, NJ 08828

Phone messages: 307-215-9840

info@cadasilassociation.org

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